Husband and I spent the morning at Kaiser. He went to a group for fellow heart patients first (I skipped that) and then we met at the cardiology dept at 10:00am for a 10:15am appt to get his ICD read. The tech is a sweetheart and put up with (and patiently answered) my millions of questions. Husband has had this device for several years now but I am just now really understanding the finer points. At one point, she turned to me and said, “Are you a nurse?” Uh, no, I’m the wife of a heart failure patient on a mission to keep him around for as long as possible.
Next, we saw the cardiologist, for an hour and a half. We saw videos of his heart beating in the wonky way it does, the leaky (but not seriously) valves and talked about the volume and velocity of blood moved with each beat. It’s all quite complicated but the Reader’s Digest version is that he is doing, “really well.” Considering. And we’ll take that. We discussed options should there be any more irregular beats – none of which we want to deal with. So, we won’t be having any of that.
Then, Husband (out of the blue) drops the bomb: How much longer? Dr says if he found anyone to answer that question, he’d be lying or guessing. But, the question triggered the “DNR Talk.” Which, was decidedly NOT FUN. Not a conversation you ever want to have and one that, for some folk, is going to happen. The form is pink. Once filled out and properly signed by the physician, the form is to accompany you every time you come to the hospital – even for a regular check up – even tho they have a copy – essentially, it becomes a part of your person. Why not just have the text tatooed on your chest? I haven’t looked at it. There was talk about where to keep this pink form – oddly, the refrigerator was the place. Apparently, the EMTs head for a beer before they start pounding on your chest? I did take a peek at the result of the Google search: DNR. There was the suggestion that this form be kept, and I am not making this up, ON THE FRIDGE DOOR! Shut UP! Right there next to the postcards from Paris, pug magnets and drawings by grandchildren. I think not. So, you have friends over for dinner, and where do they always congregate? In the kitchen, of course. Great topic for discussion. Your grandchildren ask, “What’s this pink form?” “Oh, honey, that’s just Grandaddy’s DNR form!” Why not just write up the obit and post that? Perhaps you include a copy in the Christmas cards – what we’ve been up to this year….suffice it to say, I had one of my famous “fits.”
On the way home from work, I drove straight to the local fire station to speak directly to the EMTs. At the fire station, you ring a buzzer and wait. Then, 2 drop dead gorgeous young men open the door with a puzzled look on their chiseled faces. I explain the reason for my visit, they sympathize, tell me they hope they never come to the house, and give me a great big pill bottle. It’s called The Vial of Life. Inside is a form where you fill in all the meds your patient is on and put a copy of the dreaded DNR form in it…and put it in the refrigerator. In the door, on the bottom shelf next to the expired bottles of salad dressing – not in a place you see every time you open the door, because, you know….that’s just goulish. Might as well put it on the door, right? In the bottle is also a little magnet – you know, like the one the plumber gives you – for the door. The magnet alerts the EMT that there is something other than beer inside. So, before the guys get out of the “bus” do they do rock, paper, scissors to see which one gets to be the “fridge guy?” We decided, however, that the first line of defense is the MedicAlert bracelet. Husband has one already, so we’ll have to get a revised version. We’ll do what we are supposed to do with that damn pink form and THEN NEVER SPEAK OF IT AGAIN.
June 9, 2009 at 1:29 pm |
Is it ok to admit I found the “EMT heading for a beer” and the “fridge guy” thoughts ever so slightly funny? (If not, please chalk it up to a serious defect in my upbringing where I was taught by example to laugh at serious things)
Call me ghoulish, but I would probably put my DNR on the fridge. But that is from the viewpoint of someone who doesn’t have machinery in her chest. And I probably would think differently should it be my husband’s DNR form. I’ll have to ask my mom where hers is. I know she has one; she reminds us frequently what her wishes regarding possible incapacitation are.
Hugs!
June 9, 2009 at 2:59 pm |
Oh, you just recognize black humor when you see it. It’s a coping skill that I’m getting WAY too much practice at lately. And, I have to say that the 2 EMTs who came to the door were SMOKIN’ HOT! Very distracting and crazy ironic under the circumstances.
And, yes, it IS ghoulish to put that damn form on the fridge door. Refrigerator doors are for postcards, funny or pithy magnets, children’s drawings, family photos, grocery lists and other magnets from plumber-type folk.
June 9, 2009 at 3:36 pm |
Happy to be able to furnish all with something to think about. Will bring a pink sheet to Minnesota, and then we can hold our breath. While not impressed with the hot guys at the firestation, I’m impressed with your dedication to my future. Wouldn’t want those guys to save my life, against our directions. Hope they don’t spend too much time looking for the beer. je
June 10, 2009 at 5:21 am |
So, as someone with a very vested interest, I’m going to assume that this “DNR” form basically says that they should do whatever they need to do, including jump up and down on Daddy’s chest until he wakes back up.
If it says anything different, I don’t want to know.
June 11, 2009 at 7:01 pm |
Hi there…. I followed your link via my stats. I had made a sandwich (alas, ingredients from the refrigerator) and sat down to read your blog for the first time. I have to say, I laughed my way through my lunch. Not at the situation of course, but your incredible wit and humor throughout it. Yes, a wonderful coping tool. Funny how so much of our creativity becomes the wonderful byproduct of life’s inevitable pain and loss.
Best wishes to you and your husband. May you both live LONG and WELL!
June 11, 2009 at 7:28 pm |
Diane! Thanks for visiting! I do so enjoy your work, it’s really beautiful.
We will live WELL for as LONG as we can! After finding out the the DNR bracelet is a separate one from the medic alert he already wears, Husband declared he would now order them both in 24K gold and hereafter wear them as medallions so he can look like Mr. T!