I t has been awhile since my last post. One might think that nothing of interest has been going on during that time. One would be very wrong. There has been a LOT going on, but I didn’t (and kind of still don’t) want to blog about it for many reasons. Mostly, it’s because the events are both personal and fraught with emotion and the most emotional part has to do with Husband and his health. I don’t want to put anything out in the blogosphere that he feels might compromise his privacy. So, I’ll relate other events first.
The house painting is complete. It’s lovely and was painstakingly done and the effort shows. Our front door is now red! It’s a bit lighter shade that I had envisioned, but Husband really likes it and I do, too. It’s cheerful! The flower beds are a wreck, but the tiller arrived and I picked it up on Friday. It was Sunday afternoon before it was properly put together and we got it started. I managed to attach the handles backwards, but others (read: men) fixed my mistake and put all the parts together. And, there weren’t any pieces left over ! (Yes, David, again.) I’ve decided to put azaleas in the east bed, bush bougainvilleas in the south beds and either azaleas in the garage wall bed or a mixture of azaleas and gardenias, with some low ground cover and bulbs for the spring. Lots of work ahead to make that happen, and probably more money than I’d like. The beds need soil additives and the roses are already 2′ tall coming back from the stumps, so there is stump killer in the future. I feel like a murderer.
I’ve made the summer’s first batch of jam. Fanny was a real mess from being stored for so many months. Strawberry, raspberry, basalmic jam – excellent. I’ve looked through Mes Confitures and identified some new recipes to try this year. The blackberry vines are covered with hard little green fruit that promise to ripen into sweet and juicy berries – the blackberry/raspberry jam may be my favorite. Figs are plentiful this year – I’m eager for them to be ripe.
I’ve started eating shellfish. Shrimp and crab, at least. I’ve made shrimp tacos twice and found two new things about Husband I didn’t know! One, he doesn’t like cilantro. Poor guy, I love it and have covered everything remotely mexican in nature with it for years! Two, he doesn’t like the taco format for food – he likes the burrito. Tacos are too messy. Which I understand. So, I guess from now on his shrimp tacos will be made with a large flour tortilla and technically be a shrimp burrito. With no cilantro. Which is kind of too bad because homemade tortillas are WAY better than anything available commercially.
So, now for the anxiety portion of our little drama. Husband has an ICD – implantable cardioverter defibrillator. It rests just below his left collarbone and is kind of a Big Brother for his heart. If it beats too slowly, the pacemaker component gives it a little nudge. If it should beat wildly too fast, it first gives a few “pacing shocks” and if that doesn’t do the trick, it gives a shock that sets you on your butt and hopefully knocks the heart rate back into line. It stores information and transmits it electronically once a week to some mysterious place in the ether. Every quarter, he goes into the hospital and a tech “reads” it. In April, the tech said he had experienced 2 episodes of “non-sustained ventricular tachycardia” – NSVT for short. One happened in February and the other in March. These are very rapid beats lasting less than 30 seconds in duration that resolved back to regular rhythm on its own. This triggered a round of blood tests (all within the normal range) and an echocardiogram which indicated that his ejection fraction appeared to be lower than before – which is saying something because it’s a mystery how he can function with as little blood as is being pumped from his heart to his body as it is. This led to a nuclear stress test complete with a nuclear tracer chemical and a chemical called adenosine that stresses the heart while a gamma camera hovers all around him like some giant robot looking for someplace to pounce. All these photos are taken with arms overhead – pretend you are being suspended by your wrists and given a heart attack and told DON’T MOVE for several minutes. There were 4 scans – 3 on 5/25 and another early on 5/26 – fortunately only 1 with the heart attack chemical.
Now, for those of you who have not lived through a heart attack followed by an angiogram and quadruple bypass surgery, post-surgery atrial fibrillation (heart rate in the 180s that can’t be stopped except by stopping his heart and starting it over), ICD implantation, double hernia surgery and an emergency colonscopy in the last 3.5 years, this may not seem like any big deal. As for me, I suffer from PTSD in a big way and it put me in a big downward spiral. The prospect of any more invasive procedures seriously reduces me to a quivering mass. The thing that is most telling is that right before the heart attack and right before this last ICD reading, I was actually in excellent spirits. I was beginning to almost feel normal before the last situation….you know, breathing and sleeping and not minutely inspecting every press release or educational seminar on heart failure that came along.
There’s nothing quite like thinking your Husband has actually survived a by-pass surgery and is progressing normally and then getting a phone call from a strange dr telling you that your Husband (who is in San Francisco in the hospital and you are in San Jose in your car on Friday afternoon) is experiencing a complication from surgery. Oh, his heart rate is about 180 and we can’t actually seem to get it to stop. If we can’t stop it with medication in 18 hrs, we’ll have to do a cardioversion (stop it and start it). No big deal, happens in 40% of post-op patients, but, you know, you might want to come up here. OMG. You have no idea where to stay, you have to leave now, and you don’t know what to do or what you’ll find when you get there. Talk about panic. Long story short – got there – stood in the hall sobbing while they did the cardioversion – on Saturday and then we came home on Monday. Yeah, something of a nightmare and proof positive that when things are going well, you better damn well look out. Something I never want to live through again – no one to give you any information, and I mean ANY. Oh, there’s a sign in the cardiac waiting room that tells you that you don’t have to pay for parking on the day of your loved one’s surgery. But you have to go downstairs and negotiate with the woman at the desk when all you want to do is sit in the corner and cry.
To say I was on pins and needles awaiting the tests and then the results of the test is just beyond understatement. I had a knot in my stomach for days, didn’t sleep for a week and dropped everything I picked up. It didn’t help that when the dr’s office called after the tests on Wednesday, they announced they wanted his ICD read one more time before we met with him to get the results. I was sure there was evidence of some other terminal development. I was on the verge of tears or screaming from, oh, say Wednesday morning until Thursday afternoon when I finally emailed the dr in absolute panic and found out that the test results were “stable.” He just wanted to be sure he had all the information for me because he knows that I go over his results with a fine tooth comb.
The irony of the situation is that Husband is probably doing better than he’s done since the surgery. He’s going to they gym 6-7 days a week and working out for about an hour, he’s lost 35 lbs, he’s in good spirits (when I’m not making him crazy) and all his blood tests are in the normal range. Even his kidney readings are maintaining a “stable” reading for him – not getting any worse. A big deal in these circumstances. So, what the hell is going on? NSVT puts you in a higher risk category for sudden death. His ejection fraction is already just minimal, so how it could be any lower and he maintain the level of physical activity he does is really quite mysterious.
We have an appt on Monday 6/8 to have that ICD reading and then meet with the dr to go over his test results. I have a million questions. I can at least breathe for now and have actually slept pretty well for a few nights. But, it was impossible for me to voice any of the above until just about now. It will be a long week until Monday, but I think I’ll survive.
Max and his parents are coming to see us the weekend before Father’s Day. Hooray! I’m going to focus on that and then try and make this Father’s Day really special for Husband. I’m so damn grateful he’s around, I can’t tell you.